Today I reached the point where my neuro issues were so bad, I had to call my new LLMD for advice. I'm used to hearing my old LLMD tell me to wait it out and call in a month to check in. There was never anything he could do during pregnancy to manage my symptoms due to allergies to basically all of the antibiotics safe for use during pregnancy. (Please note: this won't happen to everyone. There are plenty of antibiotics available. I just happen to be allergic to them. On top of that, I seem to be immune to Zithromax, the one I actually can take.)
After hearing this a bunch of times, it became a habit to avoid calling or reaching out on days I felt terrible.
It surprised me that when I called my new LLMD today, I actually sounded apologetic about having to bother him. He assured me that even though many doctors (LLMDs included) are hesitant to treat during pregnancy, that he wasn't, and he took my increase in symptoms very seriously.
Still, he didn't have too much to offer yet, but he did tell me this (not good news for me, but good for all of you considering making some babies):
- When I asked him if this sort of flare-up was common during Lyme Pregnancy, he said no, not at all. Usually the opposite happens, and women get a nine-month relief period from symptoms. He said he has treated a few women who have had lousy pregnancies due to Lyme, and also some who have had other medical issues that caused complications, but for the most part, the pregnancies he sees (and have heard about directly through Dr. K and Dr. B) have been uneventful. It's usually after delivery that the mother starts feeling lousy for a while.
- He still believes that detox is the best way to relieve many symptoms. We need our systems cleared out for them to run properly. In my case, he's upped the fiber supplements even more. He's also researching some herbs that are considered safe during pregnancy. Surprisingly, there aren't many that are recommended.
My doctor is taking some time to ask around and talk with other LLMDs to see if there is something that can be done for my pain and twitching, since he agrees that my treatment options are limited. I expressed that while I have no problems with going the herbal route, I'm just not comfortable pumping myself full of category C pharmaceuticals for pain. Once the baby comes, he can have me eat fertilizer for all I care--just as long as it works.
I'll hear back from him tomorrow. I'm just glad he's taken an interest in my case.
Bottom line: I'm abnormal when it comes to a significant health decline during pregnancy. It doesn't usually happen like this. I'm also abnormal in the sense that I started feeling better after I gave birth faster than most women do. If a big "relapse" occurs, it usually happens after delivery. I give all of the credit to minocycline. For some reason it helped me a great deal until I got pregnant a few months later and had to go off of it.
Do you have any remedies for treating neuro symptoms? If you do, please share!
I am a mother and writer with Chronic Lyme, on the road to acceptance and recovery. I was bitten in 1996, diagnosed 2008. I am living proof that it is possible to live meaningfully and have happy, healthy children while battling this terrible disease.